Having been 5-months since we had our medicals we were beginning to feel optimistic that things might actually be going to plan and that our Passport Request (PPR) letter may just be around the corner. That all went for a bag of spanners this morning when another brown envelope from CHC dropped through the door. There it was in black and white………the ‘Procedural Fairness’ letter we had been dreading.
It’s fair to say that we knew this was coming, and apart from the mention of ‘Respite care for the family’ I have no real reason to contest their findings. To be honest, the ‘excessive demand’ costs they estimate for Amber ($14,000 per year compared to $5,143 for the average Canadian) are a lot less than they could have been. My aim now is therefore not to question the findings, more to mitigate them with an alternative (self-funded) solution.
I started formulating our ‘individualised plan’ a few months ago and identified and contacted a Private Christian School with a Resource Base, to form the basis. Although I’ve exchanged a few emails with the school, in which they state that they have children with Asperger’s who are doing well, they have yet to send me the exact details of the ‘other experts’ that they use. No doubt you’ve guessed the problem that comes next…….the school is now shut for summer and won’t open again until my 56-days (the letter's taken 4-days to arrive) response time has expired. In effect, I have no way of contacting the school.
According to the letter, I need to provide details of experts who can provide Psychologist Assessments and Speech & Language Therapy. I would expect that our chosen school would cover the requirement for a ‘Special Educational Programme,’ as they have a process for formulating an Individual Education Programme (IEP)?
A busy few weeks ahead methinks……
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